National Rehab has stepped up its efforts to provide support to and connect with EB families in several ways, including establishment of a group on Facebook.EB Advocate Electronic Newsletter
If you or someone you know has EB, you may have already received our electronic newsletter called EB Advocate, which contains helpful information, not only in supporting treatment, but also in dealing with such issues as insurance coverage and the seasonal challenges faced by those with EB. In addition to the newsletter which can be delivered right to your inbox, we continue to update and maintain the latest information on our single-source web site that contains even more helpful information for EB families. When you check it out, be sure to sign up for the EB Advocate e-newsletter.
EB Advocate Facebook Group
One of the things that EB families seek most is support from others faced with the same challenges. Simple sharing of information, combined with connecting with each other, helps ease the burdens that come with EB. This Facebook group was created with that in mind. Check it out and join!
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