Our Hero, Maxx!

Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.

Saturday, March 27, 2010

PA International Pageant 2010




We traveled to PA on March 20th for the PA International Teen, Miss, and Mrs Pageants. I was so excited to see some of my fellow queens from the class of 2009, including, Heidi Scheer, Deanna Linz, Mary Moulds, and the new Mrs. New Jersey, Heather Cunningham! I also met Amber Smith, who is America's Miss East Coast 2010.

I was a judge and my family came along as well. I have to say that my husband gets the award for "Husband of the Year" He took the kids swimming, to a pet store, and played with them in the hotel room all while I was "busy" with judge duties! I love how close we are as a family. This past year has made me realize how truly lucky I am! The highlight of the trip was coming through the tunnel at night to see the city of Pittsburgh! Maxx was amazed at all the lights. You can tell we are country folk! It was another busy, yet a fun weekend for the Gregg Family. We took Anna and Maxx to Cabelas in West Virginia. We have been to Cabelas in Michigan and Indiana, but the WV store is great because it has a white tail deer museum. The kids loved it!

Butterfly Benefit in Louisville, KY






We just arrived home from Louisville where we attended the "Butterfly Benefit" for EB. Leslie Rader is the organizer of the event. She lost her little girl to EB and has been very proactive in raising research dollars and awareness for EB through DebRa of America. This was our 4th year attending the event. It is a fahsion show/silent auction and lunch. The day was beautiful and my little man Maxx was part of the show. He did an amazing job! My family was able to meet two new EB families from TN and IN. I love being part of such a wonderful event! Today was my last appearance as Mrs. Ohio. I pass my title on to the next amazing woman on April 10th. My year has been more than I ever expected. My family and I have been blessed to have the opportunites that have been given to us. We are off to Florida on Monday morning to visit with family! Love to everyone!

Monday, March 22, 2010

www.studiormphotography.com






I had the pleasure of working with Rick Martinez from studiorm in Delaware/Westerville, Ohio. He has an amazing talent for photography! Thanks Rick!

Friday, March 5, 2010

BeFriend EB Butterfly Ball 2010




My family and I just returned home from Michigan where we attended the BeFriend EB Butterfly Ball. I was a guest speaker and my husband and I also presented a check (in memory of my grannie who passed away over the holidays)to BeFriend EB for their continued efforts in making life bearable for all children and adults suffering from epidermolysis bullosa (EB). We had so much fun with our children, and the hotel was absolutely stunning to say the least! I have posted some pictures from the event, and I have to laugh because my crown is on crooked...........these things always happen to me! Hahahaha!

We also stopped at Cabela's on the way home so the kids could see the fun wildlife exhibits, as well as the fish. It was a wonderful weekend! A special thanks to Todd and Julie (founders of BeFriend EB) for all their hard work!