Our Hero, Maxx!

Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.

Monday, August 24, 2009

Mrs. Ohio International Interview at Fifth Third Field



Please watch the interview by clicking the picture above!




Dragon's Game!

Last night I had the opportunity to throw out the first pitch at Fifth Third Field for the Dayton Dragons as Mrs. Ohio International! My family and I were escorted down the tunnel that the players come out of. We went through the dugout and out onto the field! There were close to 8,000 people in attendance! It was such an amazing experience! Maxx got to meet Heater and Gem (Dragon's mascots) and my husband was so proud of me! Inquiring minds wanted to know if I “made” it to the plate. I did in fact have a talk with the catcher before hand. I told him not to make me look bad. He laughed, and said, “No problem”. I even got to keep the ball for a memento! Chris A. came and photographed me while I was at Fifth Third Field. He is an amazing photographer who really has an eye! He is also putting together an interview piece for me where I talk about EB and the research foundation. Please check out his work!

Saturday, August 8, 2009

Clemens Cycle for Cancer

Today my family and I enjoyed an early morning bike ride with almost 200 other bikers from across the Miami Valley. It was a beautiful day for the Clemens Cycle for Cancer! We rode in honor of my Grannie and Jason's cousin Mark, both of whom are living with cancer today. I cannot explain the overwhelming feeling that came over me when everyone took off on their bikes together...........I had a lump in my throat as I thought about those living, beating, and who have lost the battle to cancer. The ride was 10, 25, or 50 miles. We opted for the 10 mile ride since we had our 6 year old and 17 month old with us! We took two wrong turns and instead of a 10 mile ride, it turned into more like a 15 mile ride.............oh well..............better exercise for the day! A special thanks to Jenny Lewis (CEO of the Miami Valley Foundation) for being so hospitable to my family! Oh, and the highlight of Jason's day was going to Dick's Sporting Goods (it was 2 stories)...........after the ride! It's the little things that make the hubby happy, you know?
P.S. Anna fell asleep on the bike ride, and she was still sleeping when we crossed the finish line.........see the picture below!