Our Hero, Maxx!
![Our Hero, Maxx!](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMH585O7QKvpmhXJunGS1LMgxYHSxHzSRpSQQOokRLXXS-D_FITbApw7gzrbWzRCPQM7Y9RfyVDwHCEU7cKW4cqP_cJ3QIyzv5jsD_fPjNvW7gvINWBkQoKG_fYnpjLYfKuYENSfoxlfJE/s660/000_0015.jpg)
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.
Tuesday, July 14, 2009
Day One in Chicago!
I arrived in Chicago today and already, I have met some fantastic ladies! My roommate is Diane Lebson, Mrs. Washington D.C. She left a beautiful note and gift for me when I arrived. I look forward to getting to know her better! I was able to make contact with a few of the women through FB a couple months back. It was so great to meet them in person! I am so excited to be here representing Ohio and DebRA of America, but I am especially happy to be able to spread the message about EB and my son Maxx! We have orientation this evening, and I am looking forward to meeting all the ladies. I will be up bright and early tomorrow morning for my run, and a tour of the downtown Chicago! I will post more pictures tomorrow...........more of the other women, touring, etc. I love you all for the tremendous amount of support you have given me and my family! ![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZJCz8ZgbbSAo3BWMEJ7jLSnoDXfVEl-y5dV0QL_GqtoaBAcKWs92NDMMUJu_u3_GKoLWvaMGWvZAQ2I4o8CU_SHTRieVzcx6sRQD0KvKla68nWtuY096OBLVEOe2SqBd0i6dOFI92qULY/s400/100_1396.JPG)
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