Our Hero, Maxx!

Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.

Thursday, June 25, 2009

Sunny Florida!

Maxx and I are "boogie boarding"

Maxx & Anna on the beach!


We took a trip to see my Grannie and Gramps in Daytona Beach this past week. We have been going down there for about 10 years now. Each year is better that the previous, except this time was bitter-sweet. Jason was not able to go because of his work schedule, so we missed him tremendously. However, in the words of my mother and grandmother, "absence makes the heart grow fonder"..............and it did! We had a blast, but missed daddy!

We spent some quality time with my mom and grandparents while we were there, which is always great! My Grannie was diagnosed with colon cancer almost 9 years ago..........she is still with us today, but moving around slowly. There are no more options for treatment. She has been on every chemotherapy you can put in your body. Last year her doctor suggested that she travel to Baltimore to visit the Cancer Research Institute. My Grannie is so positive and looks at life in such great ways that she did in fact go to Maryland. While there on her once-a-month visits, she took a non-FDA regulated cancer drug. She told me that if she could help save another person's life by being a "guinea pig", than she would do it! She is an amazing woman!

Two weeks ago is the last time she traveled to Baltimore. She got up one morning and announced to everyone that she was done with the chemo, she wants to "live" her life. She is in a lot of pain right now, but still looks at life in positive ways. I am happy that my children got to spend a week with their great-grandparents. Life is good!


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