Our Hero, Maxx!

Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.

Friday, June 12, 2009

Maxx Madness Talentpalooza for EB

This past April, the Preble Shawnee seniors hosted the 3rd Annual "Maxx Madness Talentpalooza for EB". High school students have the opportunity to show off their talent on stage in the auditorium while also raising money for a fantastic cause, epidermolysis bullosa. The inspiration for the talent show came about three years ago when the group of seniors that I had taught as sixth graders decided to do their community service project on EB. I was honored and delighted that they would have the chance to learn about EB and spread the message of awareness, while raising research dollars for DebRA of America. They named the talent show after our son Maxx, who has dominant dystrophic epidermolysis bullosa. Each year seniors vote on what their community service project will be, and they have continued to support EB research and awareness. To date, Preble Shawnee High School seniors have contributed $12,000 to DebRA of America. I am proud to say that I have taught these students in their younger years, and amazed at the talent, generosity, and compassion they have for my son and other EB sufferers! I want to thank Matt Hopkins, the senior government teacher for all his hard work and for inspiring these students to continue serving their community!



(Speaking about EB before the show & Receiving our "Maxx Madness T-shirts)







(Maxx Madness banner made by the art classes)





(flashback to the 70's)






(16-year old guitarist, amazing talent!)

1 comment:

  1. WoW Lindsey, This is great! I am sure the students learned alot. DebRA is really lucky to have you!

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