My family and I traveled to Columbus on Saturday evening for a spaghetti dinner to raise more awareness and funds for EB. The Columbus family lost their son, Tyler to the Recessive Dystrophic type of EB over 10 years ago. Trisha Wirick, who is the aunt to Tyler was the organizer of the event. There was a silent auction, delicious food, and donated baked goods from the Brice United Methodist church women. Maxx and Anna played and played with all the kids, while my husband and I talked with family members and visitors.
I was able to sit down with Tyler's mother, Lori for a while to talk to her about EB, Maxx's current situation regarding EB, and just how hard it was to lose her son to this devastating disease. Even though it has been 10 years, her pain is still fresh and just talking about him brought tears to her eyes. I was able to speak with her about all the wonderful opportunities she has with DebRA of America. She is ready to start volunteering, spreading awareness, and helping to find a cure.
Trisha Wirick, who is the aunt of Tyler is one of the most sincere and genuine people I have ever met. She told me a story about what led her to Brice United Methodist Church, and ultimately Tyler...........it touched my heart so much. You are doing a great thing Trisha! Thank you so much for including my family and I in your wonderful event! PS........and thanks for all the yummy spaghetti!
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