Our Hero, Maxx!

Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.

Thursday, October 22, 2009

Mats Wilander Tennis & Golf Classic


I recently attended DebRA of America's national fundraiser at Westchester Country Club in New York, the "Mats Wilander Tennis & Golf Classic". Mats and Sonya Wilander's son, Erik was born with EB simplex and the event is DebRA of America's biggest money maker for research and education. Will and Vivica Ferrell were among some of the evenings most famous people attending the event. Roger Waters, from Pink Floyd was also on hand to sign a guitar and auction it off for $6000. It was amazing to see so many people in one place who shared one common purpose...........raising money for EB research and education. It was a lovely day filled with tennis and golf and the evening was just as exciting with a cocktail reception and silent auction, followed by dinner, a live auction, and dancing. I also had the chance to thank Hollister Woundcare for sponsoring the back inside cover of the International Pageant program book in Chicago. I presented them with a framed version of the page while at the dinner. Thanks Hollister! After dinner, DebRA of America presented an award to a young man who battles EB on a daily basis. EJ spoke to a crowd of about 200 guest and there was not a dry eye in the house after he finished. He is an inspiration to us all for his courage and strength. This is what all the hard work is for!





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