Our Hero, Maxx!

Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.

Thursday, September 10, 2009

Special on TLC about Epidermolysis Bullosa!


Next Wednesday (September 16, 2009) on TLC at 9 p.m., please watch "Truth Be Told - I have a child with Special Needs". A family with EB will be featured. The child featured in the special is in Minnesota right now undergoing Bone Marrow Transplant for EB. - please watch TLC on September 16th to learn more about EB.

1 comment:

  1. Does anyone know what happened to the TLC special? My neice has EB. We were all set to watch the show and it didn't air. Disappointing because we had told many people in the area to watch as well. Could have been a great educational tool for EB awareness.

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