In the fall of 2005, Channel 2 News in Dayton, Ohio came to our home to interview us about Maxx and EB. This aired the weekend of Thanksgiving, so it reached many people. It was amazing to hear from people who wanted to know more about epidermolysis bullosa and how they could help. We were even able to connect with two adult sisters living with EB who were from the Miami Valley! More awareness raised means we are one step closer to a cure! When I watch this video it makes me smile at how "little" Maxx was. He is 6-years old now and such a handsome young man and a great big brother! Click the link above to view video.
Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.
Thursday, July 9, 2009
Interview with WDTN Channel 2 News About Epidermolysis Bullosa
In the fall of 2005, Channel 2 News in Dayton, Ohio came to our home to interview us about Maxx and EB. This aired the weekend of Thanksgiving, so it reached many people. It was amazing to hear from people who wanted to know more about epidermolysis bullosa and how they could help. We were even able to connect with two adult sisters living with EB who were from the Miami Valley! More awareness raised means we are one step closer to a cure! When I watch this video it makes me smile at how "little" Maxx was. He is 6-years old now and such a handsome young man and a great big brother! Click the link above to view video.
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