"You are accomplishing your mission on getting the word out on EB!"
-Pennie Cannon, Executive Asst. DebRA of America
Today I received an email from DebRA of America. They had been contacted by an EB volunteer in Germany who had read the "Mrs. Ohio" article on the United States DebRA website. The volunteer helps EB families in Germany and wanted to know more about the "newborn care packages" we send to newly diagnosed EB babies. My family is now moving toward helping "internationally". We are reaching out to other countries who have advocates working for EB to inform them of the supplies/dressings we put in the packages. My family and DebRA of America will work with advocates in other countries to provide similar "care packages" for children born with EB. My family has worked with DebRA of America for six years.........this is exactly what all of our hard work has lead us to............helping others everywhere!
Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment