Our Hero, Maxx!

Our Hero, Maxx!
Maxx was born with dominant dystrophic epidermolysis bullosa; a rare, genetic disease that leaves blistering and open wounds on the body.

Monday, June 29, 2009

Fraternal Order of Eagles donate to DebRA of America!

In September, the Gratis, Ohio Fraternal Order of the Eagles held their annual cornhole and Monte Carlo tournament. You can imagine my family's excitement when we received the call to tell us that the organization we work so hard for was the charity they decided to donate the proceeds to! The side streets were closed off in order to accommodate the 200 hundred people in attendance that day. My family set up a table of literature/information for DebRA of America, as well an example of a newborn care package that we send out. Many people asked questions about EB and what they could do to help the cause. Maxx was in attendance and even threw a couple bean bags! It was a beautiful day of fun, fellowship, and GIVING! The Eagles donated $4000 to DebRA of America!


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