Mats Wilander Tennis & Golf Classic

I recently attended DebRA of America's national fundraiser at Westchester Country Club in New York, the "Mats Wilander Tennis & Golf Classic". Mats and Sonya Wilander's son, Erik was born with EB simplex and the event is DebRA of America's biggest money maker for research and education. Will and Vivica Ferrell were among some of the evenings most famous people attending the event. Roger Waters, from Pink Floyd was also on hand to sign a guitar and auction it off for $6000. It was amazing to see so many people in one place who shared one common purpose...........raising money for EB research and education. It was a lovely day filled with tennis and golf and the evening was just as exciting with a cocktail reception and silent auction, followed by dinner, a live auction, and dancing. I also had the chance to thank Hollister Woundcare for sponsoring the back inside cover of the International Pageant program book in Chicago. I presented them with a framed version of the page while at the dinner. Thanks Hollister! After dinner, DebRA of America presented an award to a young man who battles EB on a daily basis. EJ spoke to a crowd of about 200 guest and there was not a dry eye in the house after he finished. He is an inspiration to us all for his courage and strength. This is what all the hard work is for!

Tyler Fisher Spaghetti Dinner for EB

My family and I traveled to Columbus on Saturday evening for a spaghetti dinner to raise more awareness and funds for EB. The Columbus family lost their son, Tyler to the Recessive Dystrophic type of EB over 10 years ago. Trisha Wirick, who is the aunt to Tyler was the organizer of the event. There was a silent auction, delicious food, and donated baked goods from the Brice United Methodist church women. Maxx and Anna played and played with all the kids, while my husband and I talked with family members and visitors.

I was able to sit down with Tyler's mother, Lori for a while to talk to her about EB, Maxx's current situation regarding EB, and just how hard it was to lose her son to this devastating disease. Even though it has been 10 years, her pain is still fresh and just talking about him brought tears to her eyes. I was able to speak with her about all the wonderful opportunities she has with DebRA of America. She is ready to start volunteering, spreading awareness, and helping to find a cure.

Trisha Wirick, who is the aunt of Tyler is one of the most sincere and genuine people I have ever met. She told me a story about what led her to Brice United Methodist Church, and ultimately Tyler...........it touched my heart so much. You are doing a great thing Trisha! Thank you so much for including my family and I in your wonderful event! PS........and thanks for all the yummy spaghetti!